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BECKWIth-wiedemann Association - italy Official web site of the Associazione Italliana Sindrome Di Beckwith-Wiedemann (The Italian Beckwith-Wiedemann Association). |
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BECKWIth-wiedemann Syndrome - Japan A Japanese BWS web site. |
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Belangenvereniging Beckwith-Wiedemann Syndroom Nederlandse Belangenvereniging van BWS. (Dutch Association of BWS). |
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Sweden BWSN Sweden Beckwith-Wiedemann Support Group |
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DISCLAIMER: Whilst these links are provided for your information, the views and opinions expressed by these sites are not necessarily shared by The Beckwith-Wiedemann Children's Association of New Zealand. |
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The Beckwith-Wiedemann Children’s Association of New Zealand |
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Assisting individuals and families affected by BWS |
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BECKWIth-WIEDEMANN PArents Forum(Message Board) The Parents Forum is a website where parents can go to contact other parents on the many topics that come up in the life of a child with Beckwith-Wiedemann Syndrome.
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Related Links |
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Below you will find links to some of the web sites, message boards, and resources that we have found on the internet. We have also included links to BWS groups and associations in other countries for your reference. If you have a link that you would like to be added to this list, please email webmaster@beckwith-wiedemann-nz.org |
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BWS family chat forum An international democratic group promoting the exchange of Beckwith-Wiedemann Syndrome (BWS) related information and support, as well as facilitating a lively discussion between group members. |
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Beckwith-Wiedemann support network(Web Site) Official website for the BWSN. The BWSN is a non-profit organization created for parents, professionals, and others interested in the Beckwith-Wiedemann Syndrome. |
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Beckwith-Wiedemann Syndrome Family Forum (Web Site) The Beckwith Wiedemann Family Forum is a growing Internet community comprised of families from all over the world who are affected by BWS and got together in cyberspace in order to exchange support and information related to BWS between each other. |
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BECKWIth-wiedemann children’s foundation The Beckwith-Wiedemann Children's Foundation is a non-profit organization dedicated to increasing the quality of life for those affected by this rare, 1:14,000 birth disorder. There are many ways that you can join us in making a difference for these individuals and we welcome all who are interested. |
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(Web Site) This was started in 1990 by a group of parents with BWS children to share problems and information and to act as a self-help group. It aims to promote both public and professional awareness of BWS and to support and encourage research. The group has links with BWS groups in Holland and America. |
